This last week has been horrible. My son had a asthma attack in the middle of the night and we finally got it calmed down and little sleep was had that night.
I realize that normal kids have this issue to, but when a child has autism they don't express themselves very well. My son can usually say he's sick, but that's only when his ears hurt or throat hurts. The asthma thing
is a difficult thing to express for him! Geez wish I had a warning sign besides wheezing and then it's gone to far. Sometimes his nose runs, but usually not.
We have been explaining his asthma to him for years and he can't usually tell us it's his asthma. Ugh, wish that Autism didn't have problem social traits issues, cause then he could tell us about it.
My wish is that someday he will just say that, "It's my asthma MOM!"
Autism is just hard some days, and I know that I have worked very hard to explain stuff over and over to them! Bert and Jav do understand alot, it expressing there feelings that are difficult alot. Emotional times with them are interesting.....it takes time to understand what they want some days. We have some behaviors that happen over and over and it makes me crazy at times, cause I just heard that story!
So, I remember that it takes time to break a habit or change a routine, so patients in my home runs thin at times. We just continue to work with habits and routine on a daily basis.
Go out and do what you can and know others do what they can too. Just do it in other words.
:)
Sunday, January 30, 2011
Friday, January 28, 2011
T.G.I.F.
Man what a long week!
Between you and me to long.
Boys back in better health and hubby home! Yeah!
I realized this am after talking to both teachers that my boys do miss there Dad when he travels.
They don't like to talk about it much, but by the end of the week they are like what happened to a rountine and schedule! I do my best, but it's different when he's gone it's just me!
Mom this, Mom that....I can only do so much as one person. I need to eat and get laundry done too. Geez after 2 trips to the grocery store and 20 hours at work and 8 loads of laundry I'm tired too.
Anyway, I know this is short but I am only human and a MOM who tries to get it all done.
Have a great weekend and will check in later! New Nextbook ready to go and read a book at some point this weekend too.
Between you and me to long.
Boys back in better health and hubby home! Yeah!
I realized this am after talking to both teachers that my boys do miss there Dad when he travels.
They don't like to talk about it much, but by the end of the week they are like what happened to a rountine and schedule! I do my best, but it's different when he's gone it's just me!
Mom this, Mom that....I can only do so much as one person. I need to eat and get laundry done too. Geez after 2 trips to the grocery store and 20 hours at work and 8 loads of laundry I'm tired too.
Anyway, I know this is short but I am only human and a MOM who tries to get it all done.
Have a great weekend and will check in later! New Nextbook ready to go and read a book at some point this weekend too.
Wednesday, January 26, 2011
Full Nights Sleep!
It was nice to get a full nights sleep after a few not so good nights with Asthmatic kids in
the house. Now the breathing and sleeping nights can begin! Yeah....
My day has been slow....but lots to do. Taking it slower is nice somedays.
Guess that's the best thing about making your own schedule! Gotta love it.
That's all for today we have Gymnastics with them today and that always proves
to be interesting. One participates and the other watches...hmmm trying to get them
both to participate is another story.
Ok you ask why, loudness is an issue with the gym being so big and one of my boys is
supper sensitive to noise and that is the other reason he doesn't participate. Well, guess
gotta take him to the pool.
Have a great day! :)
the house. Now the breathing and sleeping nights can begin! Yeah....
My day has been slow....but lots to do. Taking it slower is nice somedays.
Guess that's the best thing about making your own schedule! Gotta love it.
That's all for today we have Gymnastics with them today and that always proves
to be interesting. One participates and the other watches...hmmm trying to get them
both to participate is another story.
Ok you ask why, loudness is an issue with the gym being so big and one of my boys is
supper sensitive to noise and that is the other reason he doesn't participate. Well, guess
gotta take him to the pool.
Have a great day! :)
Tuesday, January 25, 2011
Feelings
Well as they say...behind is my middle name these days.
My blog today...
I knew in my heart that it was me who would carr the burdenof our boys and there Autism! We have come so far in less than 10 years. I will not stop looking for what will help them. I will not give up on them or myself. As their Mom. As a mom of two sons with Autism. I see , so many who don't understand autism, yet I fight and fall for them everyday.
Early Intervention is only part of the answer. We as parents need to see we are there only hope at the beginning. We advocate and fight for what we see and think is best at the time. it is something as parents we have to do. They are ours!
I whole heartedly love my boys to the end of the earthand back.
I have endured countless hours and days of fighting for what they need. It's exhausting, but they are mine and our family is still one. Many I know are not a united family anymore. But I see why, but continue to fight for mine little family. We all need help and support sometimes and it's not easy to ask! Continue to ask and share with those who know you and care about you...many don't get it, but if they have kids they know behaviors and do have issu's too!
So share yourself and your story, to those have the time and care about you. It's amazing who comes to your aide and also who may support you.
Your kids are your legacy - future give them everything you can each day.
Remember we can all have a bad day! So, can the kids, but each day is new. One day at a time is all you can do and all you have. Choice is what we have!
Love
Autism
Understand
Growth
Hope
My blog today...
I knew in my heart that it was me who would carr the burdenof our boys and there Autism! We have come so far in less than 10 years. I will not stop looking for what will help them. I will not give up on them or myself. As their Mom. As a mom of two sons with Autism. I see , so many who don't understand autism, yet I fight and fall for them everyday.
Early Intervention is only part of the answer. We as parents need to see we are there only hope at the beginning. We advocate and fight for what we see and think is best at the time. it is something as parents we have to do. They are ours!
I whole heartedly love my boys to the end of the earthand back.
I have endured countless hours and days of fighting for what they need. It's exhausting, but they are mine and our family is still one. Many I know are not a united family anymore. But I see why, but continue to fight for mine little family. We all need help and support sometimes and it's not easy to ask! Continue to ask and share with those who know you and care about you...many don't get it, but if they have kids they know behaviors and do have issu's too!
So share yourself and your story, to those have the time and care about you. It's amazing who comes to your aide and also who may support you.
Your kids are your legacy - future give them everything you can each day.
Remember we can all have a bad day! So, can the kids, but each day is new. One day at a time is all you can do and all you have. Choice is what we have!
Love
Autism
Understand
Growth
Hope
Subscribe to:
Posts (Atom)